5 Tips For The New Spoonie

So you’re a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.

1. Research your symptoms/ illness thoroughly

Photo by bruce mars on Pexels.com

You might have your diagnosis or you might still be waiting. Make sure that you’re well read on your illness/ symptoms as your doctor might not be. Educate yourself on the various treatment options available to you and what type of specialist that you will need to see.

2. Do what feels right for you

One of my first doctors tried to start me on a graded exercise programme, even though they were not trained in that speciality. It was completely wrong for me and caused me to go into a flare that lasted for about six months. If something is making you worse, stop. You don’t have to do something just because a doctor told you to do it.

3. Take time to rest

Photo by Lisa Fotios on Pexels.com

When I first got sick, I was told that I would be better in three weeks and I tried to continue with my normal activities (Master’s degree + extracurricular activities) and I couldn’t work out why I was struggling to keep up with everyone else. Eventually, I crashed and I had to drop out of University. I only started to see some improvements in my condition after I started to rest properly.

4. Change doctors if you are unhappy with the service that you’re getting

Photo by Pixabay on Pexels.com

I wasted so much time at the start of my illness with a duff doctor who did not have the expertise to deal with my complex health needs. I wish that I’d taken the time to get a second opinion and a referral to the correct specialist.

5. Life isn’t a race, go at your own pace

Photo by Snapwire on Pexels.com

It doesn’t matter if you don’t graduate with the rest of your class or if you don’t achieve everything that you wanted by a certain age. You’re taking time for yourself. You’re healing. In time, you’ll be able to pick up your life where you left off.

Having a chronic illness changes your life completely. Your priorities change and you may feel like a different person. Take some time to adjust to your new life with a chronic illness.

Thank you for reading to the end of this post! Our debut ebook ‘The Reluctant Spoonie’s Guide to Living with POTS‘ is out now and contains all the tips and tricks you need to live well with POTS. Get it on Amazon Kindle here. You can also support us and our advocacy work by visiting our Etsy shop.


  1. esoterica

    Thank you for this. 💕I was diagnosed with disseminated valley fever five months ago after 3+ years of bizarre symptoms and, while having a diagnosis is reassuring, it’s forcing me recognize that it’s unhealthy to push through the pain, fatigue, and forgetfulness; it’s forced me to recognize when my body is demanding rest, and to give it what it needs. It’s been a very frustrating and confusing period where my body, mind, doctors, and treatment response have fallen short of expectation. Sending lots of love and healing your way!

    Liked by 1 person

    1. Katherine WG

      I’m so glad that you finally got a diagnosis. Having a wide range of symptoms often means that it’s difficult to get a diagnosis. It’s importent to listen to your body so you know when to rest and heal ❤


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s