Lifestyle, Newly Diagnosed

5 Tips For The New Spoonie

So you’re a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.

1. Research your symptoms/ illness thoroughly

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You might have your diagnosis or you might still be waiting. Make sure that you’re well read on your illness/ symptoms as your doctor might not be. Educate yourself on the various treatment options available to you and what type of specialist that you will need to see.

2. Do what feels right for you

One of my first doctors tried to start me on a graded exercise programme, even though they were not trained in that speciality. It was completely wrong for me and caused me to go into a flare that lasted for about six months. If something is making you worse, stop. You don’t have to do something just because a doctor told you to do it.

3. Take time to rest

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When I first got sick, I was told that I would be better in three weeks and I tried to continue with my normal activities (Master’s degree + extracurriculars) and I couldn’t work out why I was struggling to keep up with everyone else. Eventually, I crashed and I had to drop out of University. I only started to see some improvements in my condition after I started to rest properly.

4. Change doctors if you are unhappy with the service that you’re getting

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I wasted so much time at the start of my illness with a duff doctor who did not have the expertise to deal with my complex health needs. I wish that I’d taken the time to get a second opinion and a referral to the correct specialist.

5. Life isn’t a race, go at your own pace

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It doesn’t matter if you don’t graduate with the rest of your class or if you don’t achieve everything that you wanted by a certain age. You’re taking time for yourself. You’re healing. In time, you’ll be able to pick up your life where you left off.

Having a chronic illness changes your life completely. Your priorities change and you may feel like a different person. Take some time to adjust to your new life with a chronic illness.

Thank you for reading to the end of this post! If you enjoyed this post, please consider ‘buying me a coffee’ by donating to my Ko-Fi today. Your donation will help me grow my blog further, reach a wider audience and ultimately improve the lives of those who live with a chronic illness. You can also help me by visiting my Etsy shop where I sell handmade items.


2 thoughts on “5 Tips For The New Spoonie”

  1. Thank you for this. 💕I was diagnosed with disseminated valley fever five months ago after 3+ years of bizarre symptoms and, while having a diagnosis is reassuring, it’s forcing me recognize that it’s unhealthy to push through the pain, fatigue, and forgetfulness; it’s forced me to recognize when my body is demanding rest, and to give it what it needs. It’s been a very frustrating and confusing period where my body, mind, doctors, and treatment response have fallen short of expectation. Sending lots of love and healing your way!

    Liked by 1 person

    1. I’m so glad that you finally got a diagnosis. Having a wide range of symptoms often means that it’s difficult to get a diagnosis. It’s importent to listen to your body so you know when to rest and heal ❤

      Like

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