Submissions Open for Dysautonomia Awareness Month (October 2019)

October is dysautonomia awareness month and this year, I want to share stories from real people who live with forms of dysautonomia. A common form of dysautonomia is POTS and this year, PoTSUK have set 25th October as ‘POTS Awareness Day’. I live with POTS and have found it to be a very debilitating illness to live with, mainly due to inadequate support from medical professionals who were not aware of the illness. The current waiting time for a diagnosis of POTS is 6 years, but it can easily be diagnosed in 15 mins during a regular doctor’s appointment. By raising awareness of POTS and other forms of dysautonomia during October, we can help people get diagnosed sooner.

So, if you live with POTS or another form of dysautonomia, then I want to hear from you!

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How you can get involved:

  1. Email me a full blog post or paragraph on your life with dysautonomia (I will compile paragraphs from different people into a full post) with a picture (optional)
    Example- A Second Chance at Life with POTS
  2. Email me something for Instagram (Full post or story) on your life with dysautonomia (e.g. hospital pics or just a pic of yourself with a caption)
    Example- @thereluctantspoonie

Email me (Katherine) by 14th September 2019 if you would like to submit something for dysautonomia awareness month 2019. Please include links to your blog/ socials if you would like me to share them with your post. You do not need to have your own blog to take part.

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Thank you for reading to the end of this post! My debut ebook ‘The Reluctant Spoonie’s Guide to Living with POTS‘ is out now and contains all the tips and tricks you need to live well with POTS. Get it on Amazon Kindle here. You can also support me and my advocacy work by visiting my Etsy shop.


  1. thechronicallyunimaginable

    This is such a good idea! I have POTS and would love to submit a post for you. Raising awareness is crucial. I’ll put it on my list of things to do and will definitely get back to you!

    Oh hey, unrelated question. Has Ko-Fi been working for you? I’ve been considering getting one and just wanted to see how it was going for you. I’m really new to donation sites like this. Thanks! I hope today finds you well.

    Liked by 1 person

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