3 POTS Advocates To Befriend Today

By K W Warburton, The Reluctant Spoonie

POTS is a common form of dysautonomia and is a very debilitating condition which leaves 25% of those who have it unable to work or study (Grubb, 2008). 90% of people with POTS are female and there are many types of POTS including adolescent, hyperadrenergic and secondary POTS. Although POTS is though to affect millions of people worldwide, it is not commonly diagnosed and is often mis-diagnosed as another condition such as anxiety. Therefore, it is important to raise awareness of the condition during dysautonomia awareness month and throughout the year. Here are three people who do just that.

1. Jessica Kellgren-Fozard

Jessica is a YouTuber with Hereditary Neuropathy with liability to Pressure Palsies (HNPP), mixed connective tissue disorder (MCTD) and POTS. Jessica makes entertaining and lighthearted videos about the realities of living with multiple chronic illnesses which often feature her wife and two dogs. Check out her disability playlist here:

2. Amy Keys

Amy runs the blog Smiles In The Trials and also does live videos for The Mighty where she discusses the realities of living with POTS. Amy has had POTS since 2015 and like many, had to give up her career due to her illness. Living with POTS can be very isolating and watching Amy’s live streams when I was bedridden with POTS made me feel less alone. Check out one of her live streams below.

3. Natasha Lipman

Natasha is a chronic illness blogger who also works for the BBC. Natasha has EDS, POTS and ME and currently uses her Instagram as her main advocacy channel. She was once told that she was ‘too stubborn to end up in a wheelchair‘, but now uses a power chair for mobility. Follow Natasha on Instagram to join her discussions about chronic illness related issues.

Photo from Natasha Lipman / Instagram

Please check out these three POTS advocates today. Who are you favourite dysautonomia/ POTS advocates?

This post was written for Dysautonomia Awareness Month 2019. Find out more about about dysautonomia at dysautonomiainternational.org

15% of all sales from our Etsy shop will be going to Dysautonomia International this month.

Thank you for reading to the end of this post! Our debut ebook ‘The Reluctant Spoonie’s Guide to Living with POTS‘ is out now and contains all the tips and tricks you need to live well with POTS. Get it on Amazon Kindle here. You can also support us and our advocacy work by visiting our Etsy shop.


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