By K W Warburton, The Reluctant Spoonie
POTS is a common form of dysautonomia and is a very debilitating condition which leaves 25% of those who have it unable to work or study (Grubb, 2008). 90% of people with POTS are female and there are many types of POTS including adolescent, hyperadrenergic and secondary POTS. Although POTS is though to affect millions of people worldwide, it is not commonly diagnosed and is often mis-diagnosed as another condition such as anxiety. Therefore, it is important to raise awareness of the condition during dysautonomia awareness month and throughout the year. Here are three people who do just that.
1. Jessica Kellgren-Fozard
Jessica is a YouTuber with Hereditary Neuropathy with liability to Pressure Palsies (HNPP), mixed connective tissue disorder (MCTD) and POTS. Jessica makes entertaining and lighthearted videos about the realities of living with multiple chronic illnesses which often feature her wife and two dogs. Check out her disability playlist here:
2. Amy Keys
Amy runs the blog Smiles In The Trials and also does live videos for The Mighty where she discusses the realities of living with POTS. Amy has had POTS since 2015 and like many, had to give up her career due to her illness. Living with POTS can be very isolating and watching Amy’s live streams when I was bedridden with POTS made me feel less alone. Check out one of her live streams below.
3. Natasha Lipman
Natasha is a chronic illness blogger who also works for the BBC. Natasha has EDS, POTS and ME and currently uses her Instagram as her main advocacy channel. She was once told that she was ‘too stubborn to end up in a wheelchair‘, but now uses a power chair for mobility. Follow Natasha on Instagram to join her discussions about chronic illness related issues.
Please check out these three POTS advocates today. Who are you favourite dysautonomia/ POTS advocates?