I was doing a Master's course at a different University when I first got sick. I had to wait so long for an effective treatment, that I eventually lost my place. Consequently, I am somewhat apprehensive about starting a new course
Category: Lifestyle
Spoonie Travels- Reykjavik, Iceland
Looking to visit a small city with clean air and attractions within walking distance of each other? Then Reykjavik, Iceland is the place for you. Like all of the Scandinavian countries, Iceland is expensive, but the views and amazing street art makes it worth it.
What is POTS? (and do you have it?)
POTS is a form of dysautonomia (a dysfunction of the nervous system) and is usually diagnosed using a tilt table test, but it can also be diagnosed with an active stand test. The average diagnosis time for POTS is 5-6 years, but can be diagnosed within 6 months of the first onset of symptoms.
A Second Chance At Life With POTS
When I first got sick, I lost everything: my income, my degree course and my social life. I struggled to stand up for more than two minutes and I was unable to leave the house by myself. I could not think or speak coherently. I couldn’t even read a book. I slept most of my days away. It was 2015, I was 22 and I was told that I was a medical mystery.
How To Raise Awareness In Your Daily Life-Dysautonomia Awareness Month
On the whole, dysautonomia is poorly understood by medical professionals with patients having to wait years for a diagnosis and subsequent treatment.
4 Study Tips For Spoonies
Whether you're at school or University, studying with a chronic illness is hard and you may even think that it is impossible.
‘Pararibulitis’ – The Fictional Illness That gets Everything Right About Having an Invisible Illness
Yes, 'pararibulitis' is a fictional illness, but the way it is portrayed is very real and relatable to those with chronic illness.
4 Ways To Handle Insensitive Comments
When you live with a chronic illness, insensitive comments from people come with the territory. They may come from friends, family, co-workers, medical professionals or even strangers.
3 Easy Tips for Starting University as a Spoonie
Starting University can be a daunting task for anyone; add a chronic illness to the mix and you may think that it's impossible. Whether you're starting University for the first time or you're returning after a long break (like me), here are a few things that you can do to make the start of the year a bit easier.
Why You Need to Watch ‘Brain on Fire’ if you’re a Spoonie
Like many people with a chronic illness, I recently watched the Netflix adaptation of Brain on Fire. It is based on the memoir, Brain on Fire: My Month of Madness by Susannah Cahalan and follows Susannah's journey to a diagnosis the rare illness, anti-NMDA receptor encephalitis.
