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Learning to Live with Chronic Illness

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My Fourth Year With POTS: In the past year, I have started an effective treatment, applied for and started an MSc, travelled abroad for the first time with POTS and I have started planning my future again. I am always surprised at how much I can achieve in one day when I am not being plagued by my POTS symptoms. of course, I am not symptom-free every day, but I do have more good days that bad now. - - - #spoonie #spoonielife #chronicillness #cfswarrior #chronicillnesswarrior #sicklife #chronicsick #youngandchronic #butyoudontlooksick #invisibleillness #pots #potsie #potssyndrome #fibrowarrior #chronicillnessblog #healthblogger #zebrastrong #spooniesunite #spooniechat #dysautonomia #follow #like #love #blog #sickbutinvisible #disability #spoonieproblems #endowarrior #dysautonomiaawareness #migraine
I saw a thread on Twitter a few months ago where people stated the number of doctors they had to see to get their final diagnosis. This month marks my four-year anniversary with POTS. I recently sat down and considered my time with chronic illness with regards to numbers. Check out my latest blog post to see what I came up with. How do they compare to your numbers? - - - #spoonie #spoonielife #chronicillness #cfswarrior #chronicillnesswarrior #sicklife #chronicsick #youngandchronic #butyoudontlooksick #invisibleillness #pots #potsie #potssyndrome #fibrowarrior #chronicillnessblog #healthblogger #zebrastrong #spooniesunite #spooniechat #dysautonomia #follow #like #love #blog #sickbutinvisible #disability #spoonieproblems #endowarrior #dysautonomiaawareness #migraine
Do you have a favourite water bottle? This is mine. It's small and can easily be thrown into a bag or pocket when going out. Check out my 'Products for POTS' blog post for more things to help ease those POTS symptoms. Link in bio. - - - #spoonie #spoonielife #chronicillness #cfswarrior #chronicillnesswarrior #sicklife #chronicsick #youngandchronic #butyoudontlooksick #invisibleillness #pots #potsie #potssyndrome #fibrowarrior #chronicillnessblog #healthblogger #zebrastrong #spooniesunite #spooniechat #dysautonomia #follow #like #love #blog #sickbutinvisible #disability #spoonieproblems #endowarrior #dysautonomiaawareness #migraine
My Second Year With POTS: This is when I finally got the diagnosis I was waiting for. Unfortunately, it came too late for me with regards to my degree and I lost my place at University. This is the year I found a good doctor who understood my illness and who actually took the time to help me, unlike any doctor that I had seen before. I also started doing charity work for @spooniesurvivalkits and @oxfamGB - - - #spoonie #charity #spooniesurvivalkits #oxfam #chronicillnesswarrior #healthblogger #spoonielife #fibrowarrior #pots #potswarrior #potssyndrome #chroncipain #migraine #blog #volunteer #volunteering #chronicillness #cfswarrior #sicklife #chronicsick #youngandchronic #butyoudontlooksick #crochet #crochetgirlgang #virka #crafts #turtle #follow #like #love
My first year with POTS: I spent my first 12 months bedridden being passed from one specialist to another with no answers and no treatment. I was given the wrong information about my illness countless times by poor quality doctors who just wanted me to go away and leave them alone. At this time, I was taking medical leave from my University course and I felt pressured to get better within the 12-month timescale they had given me. In the end, I lost my place as I wasn't well enough to return by the set date. The first year with any illness can be rough, but when you have an invisible illness it can be ten times as hard to get the medical help that you need. How did you find the first year of your illness? Did you get the medical help and treatment that you needed? - - - #spoonie #spoonielife #chronicillness #cfswarrior #chronicillnesswarrior #sicklife #chronicsick #youngandchronic #butyoudontlooksick #invisibleillness #pots #potsie #potssyndrome #fibrowarrior #chronicillnessblog #healthblogger #zebrastrong #spooniesunite #spooniechat #dysautonomia #follow #like #love #blog #sickbutinvisible #disability #spoonieproblems #endowarrior #dysautonomiaawareness #migraine
Today is the day that I get to push the play button on my life again after hitting pause when I first started getting symptoms 4 long years ago. I had to re-do part of my MSc, hence the re-wind, but I've now caught up to where I was when I first got sick. Stay tuned this month as I have a few posts scheduled outlining the last 4 years of my life with POTS. - - - #spoonie #spoonielife #chronicillness #cfswarrior #chronicillnesswarrior #sicklife #chronicsick #youngandchronic #butyoudontlooksick #invisibleillness #pots #potsie #potssyndrome #fibrowarrior #chronicillnessblog #healthblogger #zebrastrong #spooniesunite #spooniechat #dysautonomia #follow #like #love #blog #sickbutinvisible #disability #spoonieproblems #endowarrior #dysautonomiaawareness #migraine

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