The Spoonie Student

A Week in the Life of a Student with POTS

Last year, I went back to University to get my Master's in Environmental Science. My typical week is different from most students' because I have to work around my fluctuating POTS symptoms. Sunday- Work Experience Working at my local nature reserve. I started working a local nature reserve a few months before my course started.… Continue reading A Week in the Life of a Student with POTS

Lifestyle, Newly Diagnosed

My POTS Treatments

Like many people with a chronic illness, I had to wait many years to start treatment. I naively thought that medication would solve all my problems as that is what my doctors led me to believe. The medication that I took initially did not solve all my problems as they were designed to treat my symptoms and not the underlying cause of my illness.

The Spoonie Student

How to Maintain Your Health as a College Student

I was doing a Master's course at a different University when I first got sick. I had to wait so long for an effective treatment, that I eventually lost my place. Consequently, I am somewhat apprehensive about starting a new course

Lifestyle, Newly Diagnosed

What is POTS? (and do you have it?)

POTS is a form of dysautonomia (a dysfunction of the nervous system) and is usually diagnosed using a tilt table test, but it can also be diagnosed with an active stand test. The average diagnosis time for POTS is 5-6 years, but can be diagnosed within 6 months of the first onset of symptoms.

Lifestyle, Reviews

Why You Need to Watch ‘Brain on Fire’ if you’re a Spoonie

Like many people with a chronic illness, I recently watched the Netflix adaptation of Brain on Fire. It is based on the memoir, Brain on Fire: My Month of Madness by Susannah Cahalan and follows Susannah's journey to a diagnosis the rare illness, anti-NMDA receptor encephalitis.