Sadly, over the course of my illness, I've had to write many letters of complaint to the doctors who were treating me because I wasn't receiving a good standard of care.
So you're a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.
This is a question that I asked myself when I started doing research into chronic illness. It took me a long time to accept that fact that I had a chronic illness and that I would probably be sick for the rest of my life.