Living independently can be a challenge for any twenty-something. Add a chronic illness into the mix and you may think that it is impossible. By living independently, I mean living in your own space and not with family. You may be in a shared house/ flat or living with your significant other where you are responsible for your own bills, laundry, groceries etc. These chores can be a challenge depending on the nature of your illness or energy levels.
When I'm stuck in bed all day, I like to watch a lot of YouTube. Mainly dog and cat videos, but I also watch crafty videos as well to get some inspiration for my next makes. Here are some of my favourite channels.
I made this crocheted cover for my bullet journal using some yarn I got on a recent trip to Edinburgh. I use a basic softcover dotted exercise book for my bullet journal. I got the one I'm using at the moment from Amazon. This cover is easy to make as it is just two large rectangles.
I've just completed the second semester of my MSc and, let me tell you, it was a wild ride. My semester got off to a bumpy start with a random doctor (who I've never met before) phoning me out of the blue to say that my infusions had been cancelled. After a visit to A&E,… Continue reading Studying with POTS: A Brutal 2nd Term
Cooking can be a challenge when you're a Spoonie. Standing up for a long period of time in a hot room can lead to disastrous consequences. I used to love cooking and baking before I got POTS, but now I can't even stand up whilst the kettle boils. If your illness requires you to change your diet in any way, it may mean that you have to spend more time cooking than you used to.
Marvel's Punisher Skull Gloves © 2019 The Reluctant Spoonie As a person with a chronic illness, I spend a lot of time watching Netflix, especially the Marvel shows such as Daredevil and The Punisher. A few months ago, I decided to learn the art of tapestry crochet using probably the most complicated design to do… Continue reading Marvel’s Punisher Skull Gloves
Getting out of the house when you live with a chronic illness is hard. If you have to rely on public transport to get about, it can make things even more difficult. As a general rule, I avoid travelling at peak times. Here are a few tips on rail travel for those living in the UK.
I made a bunch of these for my first batch of items I sent to Spoonie Survival Kits. I used Mariner yarns in one of their mermaid shades for the shells and pastel yellow, purple and blue for the heads and legs.
Last year, I set myself two goals: one personal and one professional and I managed to achieve them both. These days, I find that less is more when coming to setting goals for myself and I have found that I am much happier achieving two things per year than failing to get five things done in a month.
The holidays can be difficult to navigate when you have a chronic illness. Food, family and traveling can easily throw you into a flare-up.