Cooking can be a challenge when you're a Spoonie. Standing up for a long period of time in a hot room can lead to disastrous consequences. I used to love cooking and baking before I got POTS, but now I can't even stand up whilst the kettle boils. If your illness requires you to change your diet in any way, it may mean that you have to spend more time cooking than you used to.
Marvel's Punisher Skull Gloves © 2019 The Reluctant Spoonie As a person with a chronic illness, I spend a lot of time watching Netflix, especially the Marvel shows such as Daredevil and The Punisher. A few months ago, I decided to learn the art of tapestry crochet using probably the most complicated design to do… Continue reading Marvel’s Punisher Skull Gloves
Last year, I went back to University to get my Master's in Environmental Science. My typical week is different from most students' because I have to work around my fluctuating POTS symptoms. Sunday- Work Experience Working at my local nature reserve. I started working a local nature reserve a few months before my course started.… Continue reading A Week in the Life of a Student with POTS
The film starts with Susanna (Winona Ryder) trying to explain her suicide attempt to her doctor. it appears like he is only half listening to her and he questions her about illegal drug use. This struck a nerve with me as I have been frequently accused of being a drug addict, when I'm not, by doctors which has hindered my access to proper treatment in the past. Maybe it was appropriate in the 60's, but not today.
I made a bunch of these for my first batch of items I sent to Spoonie Survival Kits. I used Mariner yarns in one of their mermaid shades for the shells and pastel yellow, purple and blue for the heads and legs.
I've had POTS for almost four years. Here are a few products that I regularly use that I wish I'd known about sooner:
My bullet journal with a crocheted cover January- June 2018 Here are a few spreads from my 2018 bullet journal. I just used a random notebook that I had lying around which just happened to be one I picked up on my last trip to France. I designed the cover myself using some lightweight yarn… Continue reading 2018 Bullet Journal
The transition from undergraduate to postgraduate is hard for anyone and when you're juggling a chronic illness as well it can feel as if you're drowning.
The holidays can be difficult to navigate when you have a chronic illness. Food, family and traveling can easily throw you into a flare-up.
Like many people with a chronic illness, I had to wait many years to start treatment. I naively thought that medication would solve all my problems as that is what my doctors led me to believe. The medication that I took initially did not solve all my problems as they were designed to treat my symptoms and not the underlying cause of my illness.