I was doing a Master's course at a different University when I first got sick. I had to wait so long for an effective treatment, that I eventually lost my place. Consequently, I am somewhat apprehensive about starting a new course
POTS is a form of dysautonomia (a dysfunction of the nervous system) and is usually diagnosed using a tilt table test, but it can also be diagnosed with an active stand test. The average diagnosis time for POTS is 5-6 years, but can be diagnosed within 6 months of the first onset of symptoms.
When I first got sick, I lost everything: my income, my degree course and my social life. I struggled to stand up for more than two minutes and I was unable to leave the house by myself. I could not think or speak coherently. I couldn’t even read a book. I slept most of my days away. It was 2015, I was 22 and I was told that I was a medical mystery.
When you live with a chronic illness, insensitive comments from people come with the territory. They may come from friends, family, co-workers, medical professionals or even strangers.
Fatigue has always been one of my most debilitating symptoms. Unfortunately, it is also the one that has been the most poorly managed by my doctors.
So you're a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.
This is a question that I asked myself when I started doing research into chronic illness. It took me a long time to accept that fact that I had a chronic illness and that I would probably be sick for the rest of my life.