October is dysautonomia awareness month and this year, I want to share stories from real people who live with forms of dysautonomia. A common form of dysautonomia is POTS and this year, PoTSUK have set 25th October as 'POTS Awareness Day'. I live with POTS and have found it to be a very debilitating illness… Continue reading Submissions Open for Dysautonomia Awareness Month (October 2019)
Disclaimer- This post is not sponsored and are my own personal experiences of using Cerezen for TMD/TMJ. I have written this review because I couldn't find an impartial review online when I was considering this treatment option. I've had TMD/TMJ for a long time, at least 10 years. I did not think anything of my… Continue reading Cerezen Review (TMD/TMJ Treatment)
If you've ever talked to a stranger about your chronic pain, chances are they will have said something to you along the lines of 'but have you tried yoga?' as if yoga has the power to cure all ills. Randomly signing up to a yoga class when you're not ready may actually make things worse.
Cooking can be a challenge when you're a Spoonie. Standing up for a long period of time in a hot room can lead to disastrous consequences. I used to love cooking and baking before I got POTS, but now I can't even stand up whilst the kettle boils. If your illness requires you to change your diet in any way, it may mean that you have to spend more time cooking than you used to.
Marvel's Punisher Skull Gloves © 2019 The Reluctant Spoonie As a person with a chronic illness, I spend a lot of time watching Netflix, especially the Marvel shows such as Daredevil and The Punisher. A few months ago, I decided to learn the art of tapestry crochet using probably the most complicated design to do… Continue reading Marvel’s Punisher Skull Gloves
On the whole, dysautonomia is poorly understood by medical professionals with patients having to wait years for a diagnosis and subsequent treatment.
When you live with a chronic illness, insensitive comments from people come with the territory. They may come from friends, family, co-workers, medical professionals or even strangers.
Starting University can be a daunting task for anyone; add a chronic illness to the mix and you may think that it's impossible. Whether you're starting University for the first time or you're returning after a long break (like me), here are a few things that you can do to make the start of the year a bit easier.
So you're a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.
This is a question that I asked myself when I started doing research into chronic illness. It took me a long time to accept that fact that I had a chronic illness and that I would probably be sick for the rest of my life.