This month marks my four-year anniversary with POTS. I recently sat down and considered my time with chronic illness with regards to numbers. Here's what I came up with:
Yes, 'pararibulitis' is a fictional illness, but the way it is portrayed is very real and relatable to those with chronic illness.
Like many people with a chronic illness, I recently watched the Netflix adaptation of Brain on Fire. It is based on the memoir, Brain on Fire: My Month of Madness by Susannah Cahalan and follows Susannah's journey to a diagnosis the rare illness, anti-NMDA receptor encephalitis.
Sadly, over the course of my illness, I've had to write many letters of complaint to the doctors who were treating me because I wasn't receiving a good standard of care.