POTS is a common form of dysautonomia and is a very debilitating condition which leaves 25% of those who have it unable to work or study (Grubb, 2008). 90% of people with POTS are female and there are many types of POTS including adolescent, hyperadrenergic and secondary POTS. Although POTS is though to affect millions… Continue reading 3 POTS Advocates To Befriend Today- Dysautonomia Awareness Month 2019
When I was first diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), I read about the Levine protocol: a specialised exercise programme for those with POTS. I went to see a physiotherapist who started me on a similar graded exercise programme. At first, it was hard. I struggled with the '5 active minutes' a day that I was supposed to do. After being bedridden for over a year, my muscle strength was non-existent.
Today we have a guest post by Hannah (Chronically Challenged) for Dysautonomia Awareness month . Hannah has kindly written a post about here experiences with POTS and has shared one of her poems with us. You can follow Hannah on Instagram or Facebook. My name is Hannah, I live in a small town in New… Continue reading Dysautonomia Awareness Month- Hannah’s POTS Story + Poem
October is dysautonomia awareness month and this year, I want to share stories from real people who live with forms of dysautonomia. A common form of dysautonomia is POTS and this year, PoTSUK have set 25th October as 'POTS Awareness Day'. I live with POTS and have found it to be a very debilitating illness… Continue reading Submissions Open for Dysautonomia Awareness Month (October 2019)