The Spoonie Student

A Week in the Life of a Student with POTS

Last year, I went back to University to get my Master's in Environmental Science. My typical week is different from most students' because I have to work around my fluctuating POTS symptoms. Sunday- Work Experience Working at my local nature reserve. I started working a local nature reserve a few months before my course started.… Continue reading A Week in the Life of a Student with POTS

Lifestyle, Reviews

My Thoughts on ‘Girl, Interrupted’

The film starts with Susanna (Winona Ryder) trying to explain her suicide attempt to her doctor. it appears like he is only half listening to her and he questions her about illegal drug use. This struck a nerve with me as I have been frequently accused of being a drug addict, when I'm not, by doctors which has hindered my access to proper treatment in the past. Maybe it was appropriate in the 60's, but not today.

Lifestyle

How To Set Achievable Goals When You Live With A Chronic Illness

Last year, I set myself two goals: one personal and one professional and I managed to achieve them both. These days, I find that less is more when coming to setting goals for myself and I have found that I am much happier achieving two things per year than failing to get five things done in a month.

Lifestyle, Newly Diagnosed

My POTS Treatments

Like many people with a chronic illness, I had to wait many years to start treatment. I naively thought that medication would solve all my problems as that is what my doctors led me to believe. The medication that I took initially did not solve all my problems as they were designed to treat my symptoms and not the underlying cause of my illness.

The Spoonie Student

How to Maintain Your Health as a College Student

I was doing a Master's course at a different University when I first got sick. I had to wait so long for an effective treatment, that I eventually lost my place. Consequently, I am somewhat apprehensive about starting a new course

Lifestyle, Newly Diagnosed

What is POTS? (and do you have it?)

POTS is a form of dysautonomia (a dysfunction of the nervous system) and is usually diagnosed using a tilt table test, but it can also be diagnosed with an active stand test. The average diagnosis time for POTS is 5-6 years, but can be diagnosed within 6 months of the first onset of symptoms.

Lifestyle

A Second Chance At Life With POTS

When I first got sick, I lost everything: my income, my degree course and my social life. I struggled to stand up for more than two minutes and I was unable to leave the house by myself. I could not think or speak coherently. I couldn’t even read a book. I slept most of my days away. It was 2015, I was 22 and I was told that I was a medical mystery.