On the whole, dysautonomia is poorly understood by medical professionals with patients having to wait years for a diagnosis and subsequent treatment.
Whether you're at school or University, studying with a chronic illness is hard and you may even think that it is impossible.
Yes, 'pararibulitis' is a fictional illness, but the way it is portrayed is very real and relatable to those with chronic illness.
When you live with a chronic illness, insensitive comments from people come with the territory. They may come from friends, family, co-workers, medical professionals or even strangers.
Starting University can be a daunting task for anyone; add a chronic illness to the mix and you may think that it's impossible. Whether you're starting University for the first time or you're returning after a long break (like me), here are a few things that you can do to make the start of the year a bit easier.
Like many people with a chronic illness, I recently watched the Netflix adaptation of Brain on Fire. It is based on the memoir, Brain on Fire: My Month of Madness by Susannah Cahalan and follows Susannah's journey to a diagnosis the rare illness, anti-NMDA receptor encephalitis.
Fatigue has always been one of my most debilitating symptoms. Unfortunately, it is also the one that has been the most poorly managed by my doctors.
Sadly, over the course of my illness, I've had to write many letters of complaint to the doctors who were treating me because I wasn't receiving a good standard of care.
So you're a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.
This is a question that I asked myself when I started doing research into chronic illness. It took me a long time to accept that fact that I had a chronic illness and that I would probably be sick for the rest of my life.