When I first got sick, I lost everything: my income, my degree course and my social life. I struggled to stand up for more than two minutes and I was unable to leave the house by myself. I could not think or speak coherently. I couldn’t even read a book. I slept most of my days away. It was 2015, I was 22 and I was told that I was a medical mystery.
Yes, 'pararibulitis' is a fictional illness, but the way it is portrayed is very real and relatable to those with chronic illness.
When you live with a chronic illness, insensitive comments from people come with the territory. They may come from friends, family, co-workers, medical professionals or even strangers.
Starting University can be a daunting task for anyone; add a chronic illness to the mix and you may think that it's impossible. Whether you're starting University for the first time or you're returning after a long break (like me), here are a few things that you can do to make the start of the year a bit easier.
Like many people with a chronic illness, I recently watched the Netflix adaptation of Brain on Fire. It is based on the memoir, Brain on Fire: My Month of Madness by Susannah Cahalan and follows Susannah's journey to a diagnosis the rare illness, anti-NMDA receptor encephalitis.
Fatigue has always been one of my most debilitating symptoms. Unfortunately, it is also the one that has been the most poorly managed by my doctors.
So you're a Spoonie, now what? Here are my five top tips for your new life with a chronic illness.
This is a question that I asked myself when I started doing research into chronic illness. It took me a long time to accept that fact that I had a chronic illness and that I would probably be sick for the rest of my life.