The holidays can be difficult to navigate when you have a chronic illness. Food, family and traveling can easily throw you into a flare-up.
Like many people with a chronic illness, I had to wait many years to start treatment. I naively thought that medication would solve all my problems as that is what my doctors led me to believe. The medication that I took initially did not solve all my problems as they were designed to treat my symptoms and not the underlying cause of my illness.
When I first got sick, I lost everything: my income, my degree course and my social life. I struggled to stand up for more than two minutes and I was unable to leave the house by myself. I could not think or speak coherently. I couldn’t even read a book. I slept most of my days away. It was 2015, I was 22 and I was told that I was a medical mystery.
On the whole, dysautonomia is poorly understood by medical professionals with patients having to wait years for a diagnosis and subsequent treatment.