POTS is a common form of dysautonomia and is a very debilitating condition which leaves 25% of those who have it unable to work or study (Grubb, 2008). 90% of people with POTS are female and there are many types of POTS including adolescent, hyperadrenergic and secondary POTS. Although POTS is though to affect millions… Continue reading 3 POTS Advocates To Befriend Today- Dysautonomia Awareness Month 2019
When I was first diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), I read about the Levine protocol: a specialised exercise programme for those with POTS. I went to see a physiotherapist who started me on a similar graded exercise programme. At first, it was hard. I struggled with the '5 active minutes' a day that I was supposed to do. After being bedridden for over a year, my muscle strength was non-existent.
Today we have a guest post by Hannah (Chronically Challenged) for Dysautonomia Awareness month . Hannah has kindly written a post about here experiences with POTS and has shared one of her poems with us. You can follow Hannah on Instagram or Facebook. My name is Hannah, I live in a small town in New… Continue reading Dysautonomia Awareness Month- Hannah’s POTS Story + Poem
I was looking for a way to use up the scrap yarn that I have collected from various crochet projects over the years and I came up with this mini spoon pattern. These spoons are easy to make, although they can be a bit fiddly for the novice crocheter. These spoons can be used as… Continue reading Easy Spoon Crochet Pattern
Living independently can be a challenge for any twenty-something. Add a chronic illness into the mix and you may think that it is impossible. By living independently, I mean living in your own space and not with family. You may be in a shared house/ flat or living with your significant other where you are responsible for your own bills, laundry, groceries etc. These chores can be a challenge depending on the nature of your illness or energy levels.
October is dysautonomia awareness month and this year, I want to share stories from real people who live with forms of dysautonomia. A common form of dysautonomia is POTS and this year, PoTSUK have set 25th October as 'POTS Awareness Day'. I live with POTS and have found it to be a very debilitating illness… Continue reading Submissions Open for Dysautonomia Awareness Month (October 2019)
When I'm stuck in bed all day, I like to watch a lot of YouTube. Mainly dog and cat videos, but I also watch crafty videos as well to get some inspiration for my next makes. Here are some of my favourite channels.
If you've ever talked to a stranger about your chronic pain, chances are they will have said something to you along the lines of 'but have you tried yoga?' as if yoga has the power to cure all ills. Randomly signing up to a yoga class when you're not ready may actually make things worse.
I've just completed the second semester of my MSc and, let me tell you, it was a wild ride. My semester got off to a bumpy start with a random doctor (who I've never met before) phoning me out of the blue to say that my infusions had been cancelled. After a visit to A&E,… Continue reading Studying with POTS: A Brutal 2nd Term
I made a bunch of these for my first batch of items I sent to Spoonie Survival Kits. I used Mariner yarns in one of their mermaid shades for the shells and pastel yellow, purple and blue for the heads and legs.