October is dysautonomia awareness month and this year, I want to share stories from real people who live with forms of dysautonomia. A common form of dysautonomia is POTS and this year, PoTSUK have set 25th October as 'POTS Awareness Day'. I live with POTS and have found it to be a very debilitating illness… Continue reading Submissions Open for Dysautonomia Awareness Month (October 2019)
Disclaimer- This post is not sponsored and are my own personal experiences of using Cerezen for TMD/TMJ. I have written this review because I couldn't find an impartial review online when I was considering this treatment option. I've had TMD/TMJ for a long time, at least 10 years. I did not think anything of my… Continue reading Cerezen Review (TMD/TMJ Treatment)
I was one of those typical, mostly-healthy kids who was a little (or a lot) more flexible than usual. I was also quite prone to infections and struggled with allergies and what was assumed to be anxiety a bit, but mostly, I had a normal childhood. In high school I got really into competitive swimming, I did well at it and I was strong in academics as well. I left on a high: fit and strong, with academic awards under my belt, and a scholarship to start a medical degree at New Zealand's top University.
I spent many years bedridden/ housebound. The surprising thing is, that you can actually develop your skills from your bedroom which will make you more employable when you're ready to apply for jobs. All you need for these things is internet access. Here are my top free things to do when you're stuck in bed all day.
My first thought whenever I’m diagnosed with a new illness is Did I cause this? Of course, the answer is almost always, No. However, with my Polycystic Ovarian Syndrome (PCOS), there is a lingering feeling that I my own actions lead to me developing this condition.
When I'm stuck in bed all day, I like to watch a lot of YouTube. Mainly dog and cat videos, but I also watch crafty videos as well to get some inspiration for my next makes. Here are some of my favourite channels.
If you've ever talked to a stranger about your chronic pain, chances are they will have said something to you along the lines of 'but have you tried yoga?' as if yoga has the power to cure all ills. Randomly signing up to a yoga class when you're not ready may actually make things worse.
I made this crocheted cover for my bullet journal using some yarn I got on a recent trip to Edinburgh. I use a basic softcover dotted exercise book for my bullet journal. I got the one I'm using at the moment from Amazon. This cover is easy to make as it is just two large rectangles.
I've just completed the second semester of my MSc and, let me tell you, it was a wild ride. My semester got off to a bumpy start with a random doctor (who I've never met before) phoning me out of the blue to say that my infusions had been cancelled. After a visit to A&E,… Continue reading Studying with POTS: A Brutal 2nd Term
Cooking can be a challenge when you're a Spoonie. Standing up for a long period of time in a hot room can lead to disastrous consequences. I used to love cooking and baking before I got POTS, but now I can't even stand up whilst the kettle boils. If your illness requires you to change your diet in any way, it may mean that you have to spend more time cooking than you used to.